Giving people with dementia a voice in research
conference contributionposted on 23.01.2017 by Ruby Allen, Sue Hignett, Sharon Cook, Charlotte Jais
Any type of content contributed to an academic conference, such as papers, presentations, lectures or proceedings.
This paper presents an exploration into the involvement of people with dementia (PWD) in research. Dementia-friendly consent documentation was developed to address the known issue of obtaining consent when involving PWD in research. Questionnaires were explored as a research method to elicit data from PWD. The documentation and method were evaluated using Reflective Practice. The dementia-friendly documentation was found to be accessible, and an adapted questionnaire method elicited the perspective of PWD, though suggestions are given to improve the approach.