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Outcome measures in a combined exercise rehabilitation programme for adults with COPD and chronic heart failure: A preliminary stakeholder consensus event

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journal contribution
posted on 2019-10-11, 10:57 authored by Amy Jones, Rachel A. Evans, William D-C Man, Charlotte E. Bolton, Samantha Breen, Patrick J Doherty, Nikki Gardiner, Linzy Houchen-Wolloff, John R. Hurst, Kate Jolly, Matthew Maddocks, Jennifer K. Quint, Olivia Revitt, Lauren SherarLauren Sherar, Rod S. Taylor, Amye Watt, Jennifer Wingham, Janelle Yorke, Sally J. Singh
Combined exercise rehabilitation for chronic obstructive pulmonary disease (COPD) and chronic heart failure (CHF) is potentially attractive. Uncertainty remains as to the baseline profiling assessments and outcome measures that should be collected within a programme. Current evidence surrounding outcome measures in cardiac and pulmonary rehabilitation were presented by experts at a stakeholder consensus event and all stakeholders (n = 18) were asked to (1) rank in order of importance a list of categories, (2) prioritise outcome measures and (3) prioritise baseline patient evaluation measures that should be assessed in a combined COPD and CHF rehabilitation programme. The tasks were completed anonymously and related to clinical rehabilitation programmes and associated research. Health-related quality of life, exercise capacity and symptom evaluation were voted as the most important categories to assess for clinical purposes (median rank: 1, 2 and 3 accordingly) and research purposes (median rank; 1, 3 and 4.5 accordingly) within combined exercise rehabilitation. All stakeholders agreed that profiling symptoms at baseline were 'moderately', 'very' or 'extremely' important to assess for clinical and research purposes in combined rehabilitation. Profiling of frailty was ranked of the same importance for clinical purposes in combined rehabilitation. Stakeholders identified a suite of multidisciplinary measures that may be important to assess in a combined COPD and CHF exercise rehabilitation programme.

Funding

NIHR Career Development Fellowship (CDF-2017-009)

NIHR Collaboration for Leadership in Applied Health Research and Care (CLAHRC) South London

NIHR Nottingham BRC, Respiratory Theme

CLAHRC Northwest London

CLAHRC East Midlands

History

School

  • Sport, Exercise and Health Sciences

Published in

Chronic respiratory disease

Volume

16

Pages

1-11

Publisher

Sage

Version

  • VoR (Version of Record)

Rights holder

© The Authors

Publisher statement

This is an Open Access Article. It is published by Sage under the Creative Commons Attribution-NonCommercial 4.0 International Licence (CC BY-NC). Full details of this licence are available at: https://creativecommons.org/licenses/by-nc/4.0/

Acceptance date

2019-07-09

Publication date

2019-09-16

Copyright date

2019

Notes

Published in the Special Collection on Practical Chronic Respiratory Disease Outcome Measures for the Clinician and Researcher-Original paper

eISSN

1479-9731

Language

  • en

Location

England

Depositor

Dr Lauren Sherar