Outcome measures in a combined exercise rehabilitation programme for adults with COPD and chronic heart failure: A preliminary stakeholder consensus event
posted on 2019-10-11, 10:57authored byAmy Jones, Rachel A. Evans, William D-C Man, Charlotte E. Bolton, Samantha Breen, Patrick J Doherty, Nikki Gardiner, Linzy Houchen-Wolloff, John R. Hurst, Kate Jolly, Matthew Maddocks, Jennifer K. Quint, Olivia Revitt, Lauren SherarLauren Sherar, Rod S. Taylor, Amye Watt, Jennifer Wingham, Janelle Yorke, Sally J. Singh
Combined exercise rehabilitation for chronic obstructive pulmonary disease (COPD) and chronic heart failure (CHF) is potentially attractive. Uncertainty remains as to the baseline profiling assessments and outcome measures that should be collected within a programme. Current evidence surrounding outcome measures in cardiac and pulmonary rehabilitation were presented by experts at a stakeholder consensus event and all stakeholders (n = 18) were asked to (1) rank in order of importance a list of categories, (2) prioritise outcome measures and (3) prioritise baseline patient evaluation measures that should be assessed in a combined COPD and CHF rehabilitation programme. The tasks were completed anonymously and related to clinical rehabilitation programmes and associated research. Health-related quality of life, exercise capacity and symptom evaluation were voted as the most important categories to assess for clinical purposes (median rank: 1, 2 and 3 accordingly) and research purposes (median rank; 1, 3 and 4.5 accordingly) within combined exercise rehabilitation. All stakeholders agreed that profiling symptoms at baseline were 'moderately', 'very' or 'extremely' important to assess for clinical and research purposes in combined rehabilitation. Profiling of frailty was ranked of the same importance for clinical purposes in combined rehabilitation. Stakeholders identified a suite of multidisciplinary measures that may be important to assess in a combined COPD and CHF exercise rehabilitation programme.
Funding
NIHR Career Development Fellowship (CDF-2017-009)
NIHR Collaboration for Leadership in Applied Health Research and Care (CLAHRC) South London
This is an Open Access Article. It is published by Sage under the Creative Commons Attribution-NonCommercial 4.0 International Licence (CC BY-NC). Full details of this licence are available at: https://creativecommons.org/licenses/by-nc/4.0/
Acceptance date
2019-07-09
Publication date
2019-09-16
Copyright date
2019
Notes
Published in the Special Collection on Practical Chronic Respiratory Disease Outcome Measures
for the Clinician and Researcher-Original paper