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Parental involvement in neonatal critical care decision-making

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journal contribution
posted on 05.05.2016, 11:24 by Chloe Shaw, Elizabeth StokoeElizabeth Stokoe, Katie Gallagher, Narendra Aladangady, Neil Marlow
The paper analyses the decision-making process between doctors and parents of babies in neonatal intensive care. In particular, it focuses on cases in which the decision concerns the redirection of care from full intensive care to palliative care at the end of life. Thirty one families were recruited from a neonatal intensive care unit in England and their formal interactions with the doctor recorded. The conversations were transcribed and analysed using conversation analysis. Analysis focused on sequences in which decisions about the redirection of care were initiated and progressed. Two distinct communicative approaches to decision-making were used by doctors: ‘making recommendations’ and ‘providing options.’ Different trajectories for parental involvement in decision-making were afforded by each design, as well as differences in terms of the alignments, or conflicts, between doctors and parents. ‘Making recommendations’ led to misalignment and reduced opportunities for questions and collaboration; ‘providing options’ led to an aligned approach with opportunities for questions and fuller participation in the decision-making process. The findings are discussed in the context of clinical uncertainty, moral responsibility and the implications for medical communication training and guidance


Funding: National Institute of Health Research (NIHR) Programme Development Grant RG-DG-0611-10006


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Sociology of Health and Illness






SHAW, C. ... et al, 2016. Parental involvement in neonatal critical care decision-making. Sociology of Health and Illness, 38 (8), pp. 1217-1242.


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This is the peer reviewed version of the following article: SHAW, C. ... et al, 2016. Parental involvement in neonatal critical care decision-making. Sociology of Health and Illness, 38 (8), pp. 1217-1242, which has been published in final form at This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.