Pediatric neuromuscular diseases and psychosocial wellbeing: Why we also need to invest in digital platforms
journal contribution
posted on 2025-02-26, 14:43 authored by Oliver Gruebner, Suzanne ElayanSuzanne Elayan, Martin SykoraMartin Sykora, Markus Wolf, M von Rhein, Marta FaddaDespite the ongoing digital transformation in society, certain population groups remain underserved by these advances. The promise of digital platforms, while groundbreaking in many ways, has fallen short in addressing the unique needs of young individuals and their families diagnosed with neuromuscular disorders (NMDs), including Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS), Spinal Muscular Atrophy (SMA), or several types of Muscular Dystrophies.
Funding
Swiss School of Public Health (SSPH+) Grant
History
School
- Loughborough Business School
Published in
International Journal of Public HealthVolume
69Publisher
FrontiersVersion
- VoR (Version of Record)
Rights holder
© Gruebner, Elayan, Sykora, Wolf, von Rhein and FaddaPublisher statement
This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.Acceptance date
2024-05-31Publication date
2024-06-14Copyright date
2024ISSN
0303-8408eISSN
0303-8408Publisher version
Language
- en
