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Seeking relational information sources in the digital age: a study into information source preferences amongst family and friends of those with dementia

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posted on 09.07.2020, 13:05 by Frances Allen, Rebecca CainRebecca Cain, Caroline Meyer
Despite an increasing number of sources providing information and advice about dementia, those living with the condition feel inadequately informed. The reasons for this remain unclear. This study has three aims: to identify where people with dementia and their carers currently access dementia-related information from; to determine how accessible, credible and comprehensible people with dementia and their carers consider the available sources of information; and to determine how people with dementia and their carers would like to receive information. An online or postal survey was completed by 171 female and 41 male participants with a close family member or friend with dementia. Accessibility above quality held the greatest influence over an individual’s use of an information source. Participants preferred relational sources such as healthcare professionals as these were able to give individualised information, yet these were poorly accessible and lacked dementia specific knowledge. Therefore, individuals used non-relational sources such as the internet. However, increased use of the internet was linked to feeling overwhelmed by information. It was not the end result of the information search but the effort taken to reach the information that influenced participant’s perception of information gathering. Future research should look at ways of designing and providing accessible information sources that act and feel like relational contact.

History

School

  • Design

Published in

Dementia

Volume

19

Issue

3

Pages

766 - 785

Publisher

SAGE Publications

Version

AM (Accepted Manuscript)

Rights holder

© The Authors

Publisher statement

This paper was accepted for publication in the journal Dementia and the definitive published version is available at https://doi.org/10.1177/1471301218786568. Users who receive access to an article through a repository are reminded that the article is protected by copyright and reuse is restricted to non-commercial and no derivative uses. Users may also download and save a local copy of an article accessed in an institutional repository for the user's personal reference.

Publication date

2018-07-12

Copyright date

2018

ISSN

1471-3012

eISSN

1741-2684

Language

en

Depositor

Prof Rebecca Cain. Deposit date: 8 July 2020

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