The impact of childhood disability on family life

This is the second report of a study funded by the Joseph Rowntree Foundation that explored the costs to parents of bringing up a child with a severe disability. The first report, Paying to Care(Dobson and Middleton, 1998), described a minimum budget standard, which is the minimum amount that parents believed to be necessary to bring up a child with severe disabilities. This report describes the actual spending patterns of parents on 182 children with severe disabilities, and presents a detailed examination of how much parents actually spend on bringing up a severely disabled child. Fieldwork was conducted during 1997–98 and so all figures presented have been up-rated to 2000 by the Retail Price Index.